Apr 12, 2011

THE WAY I SEE IT, our experience with Temple Grandin


We were able to attend a dinner with Dr Temple Grandin at Idaho State University several weeks ago.  It was fun to watch people watch her.  They were mesmerized by her.  No, it wasn't her movie star good looks, but her ability to be there in the moment and not really be there.  

People casually glanced in her direction throughout the meal.  Some went up to meet her and ask for autographs and pictures.  She was very good about it, and probably so very used to it by now. 

I felt as if we were all staring at an animal in a cage, all scared to approach her.  One paparazzi (or paparazzo?) took pictures (I guess there is only one in Idaho) but only when Temple allowed.  She made it known when you could take a photo and when you couldn't, because of her sensory issues.

 After our meal concluded I got up the nerve to ask Temple for an autograph.  I brought with me some of her books that I already had. Bill sat next to her and I quickly took some pictures. 

At one point, Temple asked Bill, "So what do you do?"  It caught Bill by surprise and he was more nervous than I was, and all he could say was, "I don't know what I do."   

There was no reaction from Temple and I had wondered if she even heard him. 

I wanted so bad to just spill my guts right then and there and tell her about Bill, about him being diagnosed with Asperger's at age 35 and then having it changed to PDD-NOS at age 40. 

I wanted to tell her about our three boys that are also on the spectrum and our daughter who is supposedly neurotypical.

  I wanted to tell her that Bill is a good guy and all he needs is a good mentor and employer that understands and is willing to work with him. 

There was so much to say, but her eyes glossed over and she had that far away look, and I knew the moment was gone. 


Here are some pictures:  ( I am allergic to cameras, so no photo of me)












Temple's latest book is wonderful! I learn something new with each book she writes. 


She gets down to the REAL issues of autism, the ones parents, teachers, and individuals on the spectrum face every day. Temple offers helpful do’s and dont's, practical strategies, and try-it-now tips, all based on her “insider” perspective and a great deal of research.

These are just some of the specific topics Temple delves into:

  • How and Why People with Autism Think Differently
  • Economical Early Intervention Programs that Work
  • How Sensory Sensitivities Affect Learning
  • Behaviors Caused by a Disability vs. Just Bad Behaviors
  • Teaching People with Autism to Live in an Unpredictable World
  • Alternative Medicine vs. Conventional Medicine
  • Employment Ideas for Adults with Autism
  • And many more!
This revised and expanded edition contains revisions based on the most current autism research, as well as 14 additional articles including:
  • The Role of Genetics and Environmental Factors in Causing Autism
  • Understanding the Mind of a Nonverbal Person with Autism
  • Finding Mentors and Appropriate Colleges
  • And many more!
  • Click here for more info 

Mar 31, 2011

Autism Asperger's Digest: A great deal!



April Only! Save!  Subscribe to the award-winning Autism Asperger's Digest for one-year (6 information packed issues) at the regular price of $29.95, receive a second year for just $15.00.  That's a 50% savings off the second year!  Offer good April 1-30th in the U.S. and Canada only.  Subscribe online at www.autismdigest.com or by calling Future Horizons at 800.489.0727.www.autismdigest.com

Mar 29, 2011



Living with three boys and a husband who all think differently makes you realize you are the odd one out.  Sometimes I get so frustrated that I envision myself banging my head against the wall or tearing my hair out.  As soon as that thought occupies my mind, I realize that yes, I have officially become one of them.  Imagine how the person living with Autism feels as they try to navigate the unpredictable world around them.
  That is enough for now.  I get all wrapped up in the complexities of Autism sometimes just trying to understand.  Me--the supposed neurotypical.  I get so tired of living among Autism, breathing Autism, talking about Autism, battling Autism and it's nuances that it is so much easier to just join in. Ok.  Let's all be geeks together.  Let's all talk in made up languages at the dinner table.  Lets all discuss how if J.R.R. Tolkien were still alive he should run for president.  Let's rewind old episodes of Dean Martin and Jerry Lewis and watch them over and over.  Lets review the facts of each of the 50 United States and see who can remember which state has the population of 4,324,587.  


It is really hard to find the balance on a daily basis.  You either fight it, or you give in.  It has been six years now with the hardest yet to come. Well, enough of that.  Back to determining if the Mayan calendar really does end in December, thus the end of the world is at hand.  We'll see. 


Some mornings it's just not worth chewing through the leather straps.  ;)

Mar 18, 2011

This is My Autism, by Jess (Diary of a Mom)

Click here to read Light the White House Blue for Autism.  


On the evenings of April 1 and 2, 2011, prominent buildings across North America and the world — including the Empire State Building in New York City and the CN Tower in Toronto, Canada — will turn their lights blue to raise awareness for autism and to commemorate World Autism Awareness Day on Saturday, April 2.



Mar 6, 2011

HOW CAN YOU TELL IF HE'S HAVING A SEIZURE?

I went to wake Ryder up to get ready for church this morning but his eyes kept fluttering open and then rolling back up into his head. He couldn't stay awake. I realized this was a seizure so I thought I'd get the camera and document it. We've been to at least three different pediatric neurologists-and either neurologists themselves are a little on the kooky side or we just haven't found one we really like yet.


Poor Ryder. He is not responsive and he slept until 1:30pm. We woke him to give him his medication and a drink of water and to just check on him. I've never had a neurologist or doctor tell me what to do when these seizures occur. All I know is that they are complex partial seizures or "absent" seizures and they are difficult to detect. See for yourself.





Feb 24, 2011

MY FRIEND WITH AUTISM -written by Beverly Bishop


In this kid-friendly picture book, a young narrator explains how his friend with autism is different from other kids, while also pointing out his many strengths. This is a great book for teachers, families, therapists, or parents whose children know a child with autism.  I loved how each page explains a challenge that a child with autism has and what a "typical" child must do to help him out.  In the back of the book are notes for adults as well to help them understand what a child with autism may be experiencing through change, the senses, pretend play, quiet time, etc.  There is also a list of ten helpful strategies for helping an autistic child that would come in handy for anyone.

The author, Beverly Bishop wrote My Friend with Autism for the teachers and students in her son's elementary school class to help him fit in with his peers and to foster tolerance and understanding among her son's friends and classmates.  She is a teacher and her husband is the illustrator and an art teacher in public school for 30 years.

Over 20,000 copies of the first edition have been sold. This can also be a coloring book, too.  I highly recommend this book!   To order click here.
...Da Da Da!... (my Reading Rainbow sound...:) )

Feb 17, 2011

THE SIMPLE JOYS



Ryder received this soft sheep's wool from a friend and he absolutely loved it! 

Feb 3, 2011

Tips and Ideas for Our Children with Autism

Below are some great ideas for Valentine's Day and other holiday gift giving ideas.  It is always a stressor in our house-trying to find a gift that is just the right fit, that fits the budget, too.  Enjoy!




Finding just the right birthday, holiday, or congrats gift for anyone can be a challenge! If you have a child with an autism spectrum disorder on your list, the task may seem overwhelming. We’re here to help with a few general tips on how-to choose gifts, and the other selections in this publication can jump start your creative juices. But… just in case you find yourself needing more inspiration, we’ve assembled some of our favorite products from Internet sources.

Gift Giving Tips

·         Target special interests. The key to finding a great gift is to target the child’s special interests. Kids on the spectrum tend to have little-or-no-desire for gifts outside their area of interest, making other well-intentioned gifts a source of anxiety. Remember that holidays and special occasions are difficult for children with autism because they’re filled with surprises and bring changes to the normal routine. This is not the time to experiment with gifts intended to expand their horizon of interest.

·         Think Outside the Norm. Chronological age is not a good gift-giving indicator for our kids on the spectrum. Neither is “what all the kids want.” Our kids follow their own unique developmental progress. They may not have the ability to use, or be interested in, “age-appropriate” items. On the flip-side, if it fits their interest, they may thrive with gifts that are beyond what seems appropriate for their age.

·         Honor Suggestions. Do not ignore gift suggestions from parents just because you think they’re redundant. It doesn’t matter if you believe the child already has too many of a particular item. When it comes to a special interest, there’s never “too much,” and sometimes parents (and kids!) like to have the same item readily available in multiple rooms.

·         Fun versus Functional. While there are lots of “therapy” type products that could also make great gifts for the spectrum child, including music and other creative type CDs or DVDs, our emphasis here is on fun, rather than “work.” Some of our suggestions have embedded learning – all the better because kids experience the joy of learning without it becoming drudgery. That said, for some kids, the “functional” gifts are the most welcomed, so check with a child’s parent if you’re not sure about the child’s personality and favorite type of gifts.

·         Books. Spectrum kids relate to books on such an individual basis that we purposely did not include this type of gift on our list. The sheer number of good offerings is the second reason! If you like the idea of giving a book – and many adults do - check with the child’s parents about interests and suggestions. Many literal minded spectrum kids will not appreciate reading about animals who talk or wear clothes (they don’t really do that, after all…), and some who thrive on details and lists would be absolutely enthralled with one of those mega-compendium trivia books on a specific subject, or an educational textbook on, say, electricity or the solar system. Our kids are unique!


Valentine Gift Ideas to Get You Started

Danceland CD
Delightful music gets your kids movin’ and groovin’. This CD was designed by professional therapists and comes with a “travel guide” that provides movement suggestions to improve sensory skills and ideas for creatively adapting the music for games or theatrical performances.


28 Instant Songames CD
Delivering fun musical activities to address sensory issues for kids ages 3-8, these “songames” are creatively divided into animal realms to help develop body awareness, non-stress movement, feeling identification and self-expression.


Totally Kids for Furniture and Toys
You’ll find some truly unique items in this online store – not just toys – but also amazing furniture, such as “Retro Diner” furnishings and a unique selection of children’s beds. Different types of beds include stairway, bunk and loft beds and their styles range from traditional to themes like Sleeping Beauty, Lancelot and Secret Clubhouse. Totally Kids has books, toys and costumes for travel, education and just plain fun. Here are five of our favorites from their toy section:

BlastPad
Combines the fun of blasting foam missiles (adjustable for indoors or outside) with the physical activity of jumping and stomping on the launch pad.

Eco-Playdough
An alternative, nontoxic, all-natural play dough in colors made from plant, fruit and vegetable extracts.

Dado Cubes
A new twist on classic building blocks – these cubes interlock to create 3-dimensional structures. Made of heavy gauge plastic, the cubes come in different sizes and colors that encourage visual spatial play.

Rush Hour Traffic Jam Game
Commuting parents may need to be open-minded to fully appreciate this game but your kids will love it. Rush Hour Traffic Jam game teaches sequential movement and problem solving in a game where kids set-up the board according to pictures and then slide cars and trucks around to create a path that escapes traffic congestion. Voted one of the “Top 25 Toys of the Past 25 Years” by Parent’s Choice Magazine.

Monster Bowling
The image says it all! Who wouldn’t have fun with six textured monster pins and a beastly ball? They come in a zippered carrying case for bowling fun anywhere, any time. Great for team skill building, gross motor coordination, and turn taking.


Build-a-Robot Game
Large, colorful playing pieces are used to build a robot in a fun game that also encourages creativity and imagination.


Thomas’ Great Race Game
Another game that combines fun with learning…and it’s perfect for kids who love Thomas the Tank! Learn numbers, counting, sorting and color matching skills as you earn coal to shovel into your engine to power it across the finish line.


Interactive and Plush Dinosaur Characters
These fabulous dinosaurs are based on the PBS Kids show Dinosaur Train, but they’re perfect for any dinosaur lover. Featuring Smart Talk Technology, the dinosaurs talk and interact with one another.


Little Dragon Karate
Kids learn karate with large training cards and a PVC mat that provide visual reinforcement. This set comes with a detailed instruction booklet as well as various memory and timed games.




iPad and iPhone       
With practical and helpful applications for children with autism, the iPad and iPhone make great gifts that are educational, remedial, and enjoyable. Begin with these web sites to learn more about what’s available and how these products may help your child:

AutismHangout
Three videos to watch at the Autism Hangout: “The iPad and Autism: One Family’s Story of Success,” “Announcing Apps for Autism,” and “Apps for Special Needs.”

iPad Information

iPhone Apps Store


Imagine-a-Box
Choose one item from three categories (toy, accessory and DVD/CD/video game), they put them in a green, red, yellow or blue box, and send them off to the lucky recipient. While you can build your own box, they also have two ready-to-go boxes specifically for children with autism.


Twist ‘n Write Pencils
For those who struggle with handwriting, Pacific Writing Instruments offers an ergonomically designed Y-shaped pencil that helps fine motor coordination by promoting comfort and extra control. The same design is available in adult-sized pens called Ergo-Sof Pens. Great for stocking stuffers!

 

Octopals

Perfect for bath time fun! Floating mother octopus is a water sieve. Her 8 babies are squirting toys with suction cups. Cute, colorful, and fun for children 18 months+.
  

All About Learning              
Looking for a gift that motivates and turns strengths into valuable skills? All About Learning, Inc. offers two exceptional online courses for budding engineers and video game designers:

Elementary Engineering™
Integrating engineering theory with their unique LEGO® kit (containing more than 1,000 pieces), your child enjoys building machines while learning about gears, motion, simple machines and problem solving.

Video Game Maker™
Learn how to design and modify arcade style video games, including how to control characters, objects and outcomes, and increase difficulty level. For ages 10 and older, visit the site to be sure your computer meets the minimum requirements.


Weighted Blankets and Clothes                  
Some people on the spectrum crave the calming and stress-reducing hug of a weighted product, such as a bed or lap blanket, a neck wrap, vest or t-shirt. Here are a few sources. Important Note: be sure to check with the child’s parent before purchasing a weighted product, as the product’s weight needs to be matched to the child’s size and need for pressure.

Cozy Calm products are so soft and handmade to your desired size and color. Neck calmers, lap cozys and matching stuffed animals are also available.
http://www.cozycalm.com/                

Prince’s Sensory Delights are fashionable, sensory-smart clothes, many of which incorporate weights without looking like weighted clothing.

In Your Pocket weighted vest designs by Abilitations offer sturdy fabric and well-constructed vests that are fun and comfortable. Designed by a mom taking into consideration how young kids play and live.

Sensory Critters weighted products include blankets, lap pads, vests, hoodies, neck wraps, and weighted animals.


EZSox            

For all of our kids learning to dress, these training socks are fun and put your child on the road to succes, with whimsical animal faces that provide visual clues about which side is up and sturdy, built-in handles that make them easy to pull-up. This adorable video of kids using EZSox tells the story: http://www.youtube.com/watch?v=eVrqfzLgYu8


Table Top Theater
For kids who love puppets, this beautiful table top theater will encourage them to perform plays they've created while learning to express feelings through the puppets. For kids who absolutely love dramatic expression, there’s a standing-size theatre also available.

 

Create Your Own Monster Puppet Package

What’s a play without the puppets? Create hundreds of crazy creatures with this fuzzy friend and its interchangeable parts that include weird and wacky eyes, ears, antennae and more. Carrying case included for quick clean-up!


Glide Bikes
Learning to ride a bicycle is safe and fun when those all important first steps -- learning to balance and steer -- can be accomplished with a glide bike. These "balance bikes" do not have pedals, a chain or training wheels. Instead, they're built small enough so children can "walk" the bike while sitting. Their feet touch the ground and can be used to balance and push the bike forward, until they're comfortable enough to let the bike glide while they balance with feet resting on foot pegs. These bikes won approval from professionals at the Easter Seals/UCP Preschool in Wilmington, NC. They recommend the bike as a therapeutic tool for strengthening, endurance and balance...not to mention the boost to kid's confidence!

 

Toys“R”Us® Toy Guide for Differently-Abled Kids
If you need more ideas, tips or inspiration, this year’s annual Toys“R”Us® guide has 60 pages of toy recommendations for children with disabilities.

This article is taken with permission from www.autismdigest.com, where readers can go online and, by signing in, can access free copies of the magazine’s eGuide, which is packed full of more information on holidays and gift giving for children on the spectrum.

Article was amended to fit the present season of Valentine’s Day.

Jan 11, 2011

THE TEA SET


Twenty seven years had past since that 6th grade white-elephant gift exchange party.  I was a shy, chubby girl with glasses.  It was my turn.  I opened my gift, revealing a miniature porcelain tea set.  There was a collective gasp from the whole class.  Most gifts were crayons and coloring books, card games and stickers-but this, this was different.  Everyone wanted that beautiful tea set.
 As we played the white-elephant game, the delicate tea set was passed around from the most assertive student in the class who wanted it for his kid sister, to the absent-minded student who pretended not to care. 
One voice commanded attention.  I cannot remember who started it, but someone said, "Hey, give it back to Stephanie.  She picked it, don't take it away from her. "  Eventually others chimed in, following the leader.  "Hey, give it back!"
 I secretly thought the tea set was the best gift ever, but being labeled the shy girl in school, I felt like I lived up to that potential, and did not protest as we continued the game.  When the fragile tea set became mine again, I secretly hoped it would not be taken from my hands.  I watched the clock.  School was almost out, when the tea set would be mine indefinitely. 
I kept that tea set for many years and had tea parties with my sisters with hot cocoa we would sneak from the kitchen.  Eventually, as life continued, the tea set was forgotten and became just a memory. 
Life's joys and sorrows find everyone.  My sister's marriage was ending in divorce after 15 years.  It had affected my nieces and nephew and times were tough. My life had paralleled hers, and I had wondered if mine would end that way too. 
It was Christmas time and my own life was in a shambles.  With three out of four kids with disabilities and a husband with a chronic back injury unable to work, I knew this Christmas would be stressful.  I was dreading it.  My husband and I agreed not to exchange gifts for each other and just concentrate on the kids-- making sure they would have a decent Christmas.
Christmas came and went and was rather uneventful.  The kids were happy with their gifts, and that's all we could ask for. 
 For New Years Eve we got together with extended family.  My niece ran up to me holding a brown package from her dad who had dropped her off.   "Open it, Aunt Steph!"  she exclaimed.
My first  thought was this will be  the first gift I will actually unwrap for Christmas this year, and that  made me smile. On it were the words, 'To the good 'ol days'.
 I tore the wrapping revealing a beautiful porcelain tea set.
Memories flooded through my mind and tears flooded my eyes as I remembered my brother-in-law and how he used to be.  He too was in that 6th grade class and had remembered the tiny tea set that brought about such commotion among the students.  "Give it back."  I whispered. "Don't take it away."
I carefully put the tea set back into its box. It will forever hold the memories I have of one particular ex-brother-in-law and his last good-bye. 

BEING GREEN

THE CUT-OUT KID STRIKES AGAIN!

Ernie and Oscar learn they like different things-great for kids on the Spectrum!